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One in five families has a child with special health care needs-but medical and human service professionals often don't get the training they need to provide long-term, integrated care for these children. Filling a critical gap in professional education, this groundbreaking textbook and training tool presents a comprehensive, interdisciplinary framework for delivering effective health care to children with disabilities and chronic illnesses. Going far beyond the traditional model of treating and reducing symptoms, renowned pediatrician Heidi Feldman gives professionals a big-picture blueprint for improving the lives of children with disabilities and helping them participate fully in family and community life.
Prepare health professionals to:
Focus on three key priorities that improve children's lives-inclusion in community life, contribution to society, and health and well-being
Understand and resolve the challenges of delivering health care to children with disabilities
Collaborate on comprehensive, integrated care plans with parents and other professionals
Implement family- and person-centered care at the clinical, organizational, and policy levels
Address system fragmentation and work toward coordinated care
Engage in system and policy reform to ensure better clinical and functional outcomes for children
To illustrate key points, Dr. Feldman relates powerful stories in every chapter from her 30+ years of experience working with children with disabilities and their families. Readers will get invaluable insights on successful programs, best practices, family concerns and experiences, professional preparation, and more.
"A fresh approach to thinking about the care of children with disabilities...helps define a true 21st century approach to inclusion."--Judith Palfrey, T. Berry Brazelton Professor of Pediatrics, Harvard Medical School
"An enlightened, transformative roadmap for healthcare teams serving children and youth with developmental disabilities."--Dr. Jane Case-Smith, Professor, Occupational Therapy, The Ohio State University
"With health care delivery in flux, the timing of this book could not be better. With her positive, engaging, and compelling writing style, Feldman reframes the paradigm of the approach to the care of children with disabilities through the lenses of clinical care, education, research, and policy."--Nancy Roizen, Director, Division of Developmental/Behavioral Pediatrics and Psychology, Professor of Pediatrics, UH/Rainbow Babies and Children's Hospital
280 pages. 2013
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